The ALS & You documentary is powered by a coalition of nonprofit leaders, clinical researchers, and community storytellers.
Organizations working with ALS & You to advance care, accelerate research, and strengthen community support.
To partner with the ALS community as we drive the discovery of prevention strategies, treatments, and cures for ALS; provide access to quality care and connection; and promote initiatives to improve health outcomes.
Conduct foundational research to identify the ALS disease mechanism and ALS biomarkers to enable pharmaceutical and biotechnology companies to develop the ALS cure.
The ALS Hope Foundation exists to provide long-term support to: Clinical centers of excellence for the CARE, support, and treatment of people living with ALS; Programs that promote EDUCATION about diagnosis, treatment, and care; as well as Clinical and basic RESEARCH programs leading to improved care and a cure.
The Livermore Lab Foundation serves as an independent key philanthropic partner with Lawrence Livermore National Laboratory (LLNL), providing mechanisms for public and private investments, grants and philanthropic gifts that support research, innovation, workforce and STEM education initiatives at LLNL. Since 2019, LLF has invested nearly $2M in early-stage research on ALS and other neurodegenerative diseases, leveraging the Lab's unique capabilities to accelerate collective progress toward diagnoses, treatments and ultimately, cures.
Genetic ALS & FTD: End the Legacy was born through the efforts and vision of dozens of people impacted by genetic ALS and FTD who collectively saw the need for our community's voice to be heard . Since our forming as a group in 2020 and especially since our debut as a non-profit in 2023, we have been proud to witness how our activities have changed the conversation around inherited ALS and FTD. We are possible due to the commitment and passion of many volunteers, and we are always recruiting!
